Experiences of Epistemic Injustice in the Spanish Psychiatric System: A Qualitative Analysis from the Perspective of Mental Health Activists
DOI:
https://doi.org/10.31637/epsir-2026-1631Palabras clave:
mental health, epistemic injustice, societal participation, psychiatry, qualitative research, testimonial injustice, hermeneutical injustice, patient involvementResumen
Introduction: This study explores the critical discourse of patients and activists regarding their personal experiences within the Spanish Psychiatric System, highlighting the challenges they face when interacting with mental health professionals and resources. Methodology: A descriptive qualitative design was employed. From 2021 to 2022, five focus groups (n=32) were conducted with individuals diagnosed with mental health issues. The participants’ varied interactions within the psychiatric system provided insights into their diverse experiences and perspectives. Results: Participants frequently reported not feeling adequately listened to by mental health professionals, lacking involvement in decisions concerning their treatment, and experiencing barriers to full societal participation due to their psychiatric diagnoses. Discussions: Through Fricker’s concept of epistemic injustice, examples of testimonial and hermeneutic injustice were identified, highlighting how patients feel their voices and experiences are undervalued, impacting both their care and their ability to engage as citizens. Conclusions: The study emphasizes the urgent need to involve patients in decisions regarding their treatment, based on their own experiences, and to improve their societal inclusion, ensuring that their perspectives are heard and respected.
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Abma, T. A., Voskes, Y., & Widdershoven, G. (2017). Participatory Bioethics Research and its Social Impact: The Case of Coercion Reduction in Psychiatry. Bioethics, 31(2), 144-152. https://doi.org/10.1111/bioe.12319 DOI: https://doi.org/10.1111/bioe.12319
Beresford, P. (2020). ‘Mad’, Mad Studies and Advancing Inclusive Resistance. Disability & Society, 35(8), 1337-1342. https://doi.org/10.1080/09687599.2019.1692168 DOI: https://doi.org/10.1080/09687599.2019.1692168
Beresford, P., & Russo, J. (2021). The Routledge International Handbook of Mad Studies. Routledge. https://doi.org/10.4324/9780429465444 DOI: https://doi.org/10.4324/9780429465444
Bortolotti, L. (2015). The Epistemic Innocence of Motivated Delusions. Consciousness and Cognition, 33, 490-499. https://doi.org/10.1016/j.concog.2014.10.005 DOI: https://doi.org/10.1016/j.concog.2014.10.005
Bueter, A. (2019). Epistemic Injustice and Psychiatric Classification. Philosophy of Science, 86(5), 1064-1074. https://doi.org/10.1086/705443 DOI: https://doi.org/10.1086/705443
Bueter, A. (2023). Diagnostic Overshadowing in Psychiatric-Somatic Comorbidity: A Case for Structural Testimonial Injustice. Erkenntnis, 88(3), 1135-1155. https://doi.org/10.1007/s10670-021-00396-8 DOI: https://doi.org/10.1007/s10670-021-00396-8
Carel, H., & Kidd, I. J. (2014). Epistemic Injustice in Healthcare: A Philosophical Analysis. Medicine, Health Care and Philosophy, 17(4), 529-540.
https://doi.org/10.1007/s11019-014-9560-2 DOI: https://doi.org/10.1007/s11019-014-9560-2
Carrotte, E. R., Hartup, M. E., Lee-Bates, B., & Blanchard, M. (2021). “I Think That Everybody Should Be Involved”: What Informs Experiences of Shared Decision-making in Supporting People Living with Schizophrenia Spectrum Disorders? Patient Education and Counseling, 104(7), 1583-1590. https://doi.org/10.1016/j.pec.2020.11.012 DOI: https://doi.org/10.1016/j.pec.2020.11.012
Coghlan, S., & D’Alfonso, S. (2021). Digital Phenotyping: An Epistemic and Methodological Analysis. Philosophy & Technology, 34(4), 1905-1928.
https://doi.org/10.1007/s13347-021-00492-1 DOI: https://doi.org/10.1007/s13347-021-00492-1
Crichton, P., Carel, H., & Kidd, I. J. (2017). Epistemic Injustice in Psychiatry. BJPsych Bulletin, 41(2), 65-70. https://doi.org/10.1192/pb.bp.115.050682 DOI: https://doi.org/10.1192/pb.bp.115.050682
Daley, A., Costa, L., & Beresford, P. (2019). Madness, Violence, and Power: A Critical Collection. University of Toronto Press. https://doi.org/10.3138/9781442629981 DOI: https://doi.org/10.3138/9781442629981
Davidson, L. (2004). Phenomenology and Contemporary Clinical Practice: Introduction to Special Issue. Journal of Phenomenological Psychology, 35(2), 149-162. https://doi.org/10.1163/1569162042652218 DOI: https://doi.org/10.1163/1569162042652218
Daya, I., Maylea, C., Raven, M., Hamilton, B., & Jureidini, J. (2020). Defensive Rhetoric in Psychiatry: An Obstacle to Health and Human Rights. The Lancet Psychiatry, 7(3), 231. https://doi.org/10.1016/S2215-0366(19)30534-6 DOI: https://doi.org/10.1016/S2215-0366(19)30534-6
Degerman, D. (2023). Epistemic Injustice, Naturalism, and Mental Disorder: On the Epistemic Benefits of Obscuring Social Factors. Synthese, 201(6), 213. https://doi.org/10.1007/s11229-023-04210-6 DOI: https://doi.org/10.1007/s11229-023-04210-6
Della Croce, Y. (2023). Epistemic Injustice and Nonmaleficence. Journal of Bioethical Inquiry, 20(3), 447-456. https://doi.org/10.1007/s11673-023-10273-4 DOI: https://doi.org/10.1007/s11673-023-10273-4
Dotson, K. (2011). Tracking Epistemic Violence, Tracking Practices of Silencing. Hypatia, 26(2), 236-257. https://doi.org/10.1111/j.1527-2001.2011.01177.x DOI: https://doi.org/10.1111/j.1527-2001.2011.01177.x
Drożdżowicz, A. (2021). Epistemic Injustice in Psychiatric Practice: Epistemic Duties and the Phenomenological Approach. Journal of Medical Ethics, 47(12), e69-e69. https://doi.org/10.1136/medethics-2020-106679 DOI: https://doi.org/10.1136/medethics-2020-106679
Dusol, J. (2023). EUROPEAN CODE OF CONDUCT FOR RESEARCH INTEGRITY – REVISED EDITION 2023. https://acortar.link/r9ZKMB
Foucault, M. (2006). History of Madness. Routledge. https://doi.org/10.4324/9780203642603 DOI: https://doi.org/10.4324/9780203642603
Fricker, M. (2007). Epistemic Injustice: Power and the Ethics of Knowing. Oxford University Press. https://doi.org/10.1093/acprof:oso/9780198237907.001.0001 DOI: https://doi.org/10.1093/acprof:oso/9780198237907.001.0001
Fricker, M. (2017). Evolving Concepts of Epistemic Injustice. In I. J. Kidd, J. Medina, & G. Pohlhaus Jr, (Eds,) (pp. 53-60). Routledge. https://doi.org/10.4324/9781315212043-5 DOI: https://doi.org/10.4324/9781315212043-5
Gagné-Julien, A. M. (2021). Wrongful Medicalization and Epistemic Injustice in Psychiatry: The Case of Premenstrual Dysphoric Disorder. European Journal of Analytic Philosophy, 17(2), S4-36. https://doi.org/10.31820/ejap.17.3.3 DOI: https://doi.org/10.31820/ejap.17.3.3
Gagné-Julien, A. M. (2022). Medicalization, Contributory Injustice, and Mad Studies. Kennedy Institute of Ethics Journal, 32(4), 401-434. https://doi.org/10.1353/ken.2022.0023 DOI: https://doi.org/10.1353/ken.2022.0023
Gardner, C., & Kleinman, A. (2019). Medicine and the Mind—The Consequences of Psychiatry’s Identity Crisis. New England Journal of Medicine, 381(18), 1697-1699. https://doi.org/10.1056/NEJMp1910603 DOI: https://doi.org/10.1056/NEJMp1910603
Gorman, R., & LeFrançois, B. A. (2017). Mad Studies. En Routledge International Handbook of Critical Mental Health (pp. 107-114). Routledge. https://doi.org/10.4324/9781315399584-14 DOI: https://doi.org/10.4324/9781315399584-14
Gosselin, A. (2022). Responding to Sanist Microaggressions with Acts of Epistemic Resistance. Hypatia, 37(2), 293-314. https://doi.org/10.1017/hyp.2022.9 DOI: https://doi.org/10.1017/hyp.2022.9
Grim, K., Tistad, M., Schön, U. K., & Rosenberg, D. (2019). The Legitimacy of User Knowledge in Decision-Making Processes in Mental Health Care: An Analysis of Epistemic Injustice. Journal of Psychosocial Rehabilitation and Mental Health, 6(2), 157-173. https://doi.org/10.1007/s40737-019-00145-9 DOI: https://doi.org/10.1007/s40737-019-00145-9
Groot, B., Haveman, A., & Abma, T. (2022). Relational, Ethically Sound Co-production in Mental Health Care Research: Epistemic Injustice and the Need for an Ethics of Care. Critical Public Health, 32(2), 230-240. https://doi.org/10.1080/09581596.2020.1770694 DOI: https://doi.org/10.1080/09581596.2020.1770694
Gustafsson, L. K., Wigerblad, Å., & Lindwall, L. (2014). Undignified Care: Violation of Patient Dignity in Involuntary Psychiatric Hospital Care from a Nurse’s Perspective. Nursing Ethics, 21(2), 176-186. https://doi.org/10.1177/0969733013490592 DOI: https://doi.org/10.1177/0969733013490592
Hall, M. C. (2017). Obscured Social Construction as Epistemic Harm. Journal of Social Philosophy, 48(3), 344-358. https://doi.org/10.1111/josp.12196 DOI: https://doi.org/10.1111/josp.12196
Harcourt, E. (2021). Epistemic Injustice, Children and Mental Illness. Journal of Medical Ethics, 47(11), 729-735. https://doi.org/10.1136/medethics-2021-107329 DOI: https://doi.org/10.1136/medethics-2021-107329
Harding, S. (1991). Whose Science? Whose Knowledge?: Thinking from Women’s Lives. Cornell University Press.
Harding, S. (1992). After the Neutrality Ideal: Science, Politics, and “Strong Objectivity”. Social research, 567-587.
Harding, S. (1995). Strong Objectivity: A Response to the New Objectivity Question. Synthese, 104(3), 331-349. https://doi.org/10.1007/BF01064504 DOI: https://doi.org/10.1007/BF01064504
Harding, S. (2013). Rethinking Standpoint Epistemology: What is “Strong Objectivity”? In Feminist epistemologies (pp. 49-82). Routledge. https://bit.ly/4lyQsJj
Harding, S. G. (2004). The Feminist Standpoint Theory Reader: Intellectual and Political Controversies. Psychology Press.
Harris, O., Andrews, C., Broome, M. R., Kustner, C., & Jacobsen, P. (2022). Epistemic Injustice Amongst Clinical and Non-clinical Voice-hearers: A Qualitative Thematic Analysis Study. British Journal of Clinical Psychology, 61(4), 947-963. https://doi.org/10.1111/bjc.12368 DOI: https://doi.org/10.1111/bjc.12368
Haslanger, S. (2017). Objectivity, Epistemic Objectification, and Oppression 1. En The Routledge Handbook of Epistemic Injustice (pp. 279-290). Routledge. https://doi.org/10.4324/9781315212043-28 DOI: https://doi.org/10.4324/9781315212043-28
Houlders, J. W., Bortolotti, L., & Broome, M. R. (2021). Threats to Epistemic Agency in Young People with Unusual Experiences and Beliefs. Synthese, 199(3), 7689-7704. https://doi.org/10.1007/s11229-021-03133-4 DOI: https://doi.org/10.1007/s11229-021-03133-4
Hultman, L., & Hultman, M. (2023). “Believe Me, Only I Know How I Feel.” An Autoethnographic Account of Experiences of Epistemic Injustice in Mental Health Care. Frontiers in Psychiatry, 14. https://doi.org/10.3389/fpsyt.2023.1058422 DOI: https://doi.org/10.3389/fpsyt.2023.1058422
Kidd, H. C., Ian James. (2017). Epistemic Injustice in Medicine and Healthcare. En The Routledge Handbook of Epistemic Injustice. Routledge. https://doi.org/10.4324/9781315212043-37
Kidd, I. J., & Carel, H. (2017). Epistemic Injustice and Illness. Journal of Applied Philosophy, 34(2), 172-190. https://doi.org/10.1111/japp.12172 DOI: https://doi.org/10.1111/japp.12172
Kidd, I. J., & Carel, H. (2018). Healthcare Practice, Epistemic Injustice, and Naturalism. In Harms and Wrongs in Epistemic Practice (pp. 211-233). https://doi.org/10.1017/S1358246118000620 DOI: https://doi.org/10.1017/S1358246118000620
Kidd, I. J., & Carel, H. (2019). Pathocentric Epistemic Injustice and Conceptions of Health. Overcoming Epistemic Injustice: Social and Psychological Perspectives, 153-162.
Kidd, I. J., & Carel, H. (2021). The Predicament of Patients. Royal Institute of Philosophy Supplements, 89, 65-84. https://doi.org/10.1017/S1358246121000059 DOI: https://doi.org/10.1017/S1358246121000059
Kidd, I. J., Medina, J., & Jr, G. P. (2017). The Routledge Handbook of Epistemic Injustice. Taylor & Francis. https://doi.org/10.4324/9781315212043 DOI: https://doi.org/10.4324/9781315212043
Kidd, I. J., Spencer, L., & Carel, H. (2022). Epistemic Injustice in Psychiatric Research and Practice. Philosophical Psychology, 0(0), 1-29. https://doi.org/10.1080/09515089.2022.2156333 DOI: https://doi.org/10.1080/09515089.2022.2156333
Kious, B. M., Lewis, B. R., & Kim, S. Y. H. (2023). Epistemic Injustice and the Psychiatrist. Psychological Medicine, 53(1), 1-5. https://doi.org/10.1017/S0033291722003804 DOI: https://doi.org/10.1017/S0033291722003804
Lakeman, R. (2010). Epistemic Injustice and the Mental Health Service User. https://doi.org/10.1111/j.1447-0349.2010.00680.x DOI: https://doi.org/10.1111/j.1447-0349.2010.00680.x
LeBlanc, S., & Kinsella, E. A. (2016). Toward Epistemic Justice: A Critically Reflexive Examination of ‘Sanism’ and Implications for Knowledge Generation. Studies in Social Justice, 10(1), Article 1. https://doi.org/10.26522/ssj.v10i1.1324 DOI: https://doi.org/10.26522/ssj.v10i1.1324
Mason, R. (2011). Two Kinds of Unknowing. Hypatia, 26(2), 294-307. https://doi.org/10.1111/j.1527-2001.2011.01175.x DOI: https://doi.org/10.1111/j.1527-2001.2011.01175.x
McKinnon, R. (2016). Epistemic Injustice. Philosophy Compass, 11(8), 437-446. https://doi.org/10.1111/phc3.12336 DOI: https://doi.org/10.1111/phc3.12336
Medina, J. (2011). The Relevance of Credibility Excess in a Proportional View of Epistemic Injustice: Differential Epistemic Authority and the Social Imaginary. Social Epistemology, 25(1), 15-35. https://doi.org/10.1080/02691728.2010.534568 DOI: https://doi.org/10.1080/02691728.2010.534568
Medina, J. (2012). The Epistemology of Resistance: Gender and Racial Oppression, Epistemic Injustice, and Resistant Imaginations. Oxford University Press. https://doi.org/10.1093/acprof:oso/9780199929023.001.0001 DOI: https://doi.org/10.1093/acprof:oso/9780199929023.001.0001
Menzies, R., LeFrançois, B. A., & Reaume, G. (2013). Introducing Mad Studies. Mad Matters: A Critical Reader in Canadian Mad Studies, 1-22.
Newbigging, K., & Ridley, J. (2018). Epistemic Struggles: The Role of Advocacy in Promoting Epistemic Justice and Rights in Mental Health. Social Science & Medicine, 219, 36-44. https://doi.org/10.1016/j.socscimed.2018.10.003 DOI: https://doi.org/10.1016/j.socscimed.2018.10.003
Nyttingnes, O., Ruud, T., & Rugkåsa, J. (2016). ‘It’s Unbelievably Humiliating’—Patients’ Expressions of Negative Effects of Coercion in Mental Health Care. International Journal of Law and Psychiatry, 49, 147-153. https://doi.org/10.1016/j.ijlp.2016.08.009 DOI: https://doi.org/10.1016/j.ijlp.2016.08.009
Okoroji, C., Mackay, T., Robotham, D., Beckford, D., & Pinfold, V. (2023). Epistemic Injustice and Mental Health Research: A Pragmatic Approach to Working with Lived Experience Expertise. Frontiers in Psychiatry, 14. https://doi.org/10.3389/fpsyt.2023.1114725 DOI: https://doi.org/10.3389/fpsyt.2023.1114725
Pietikäinen, P. (2015). Madness: A History. Routledge. https://doi.org/10.4324/9781315708966 DOI: https://doi.org/10.4324/9781315708966
Pohlhaus, G. (2012). Relational Knowing and Epistemic Injustice: Toward a Theory of Willful Hermeneutical Ignorance. Hypatia, 27(4), 715-735.
https://doi.org/10.1111/j.1527-2001.2011.01222.x DOI: https://doi.org/10.1111/j.1527-2001.2011.01222.x
Ramsey, P., Jonsen, A. R., & May, W. F. (2002). The Patient as Person: Explorations in Medical Ethics. Yale University Press.
Read, J., Bentall, R., Bentall, P. of C. P. D. of P. S. R., & Mosher, L. (2004). Models of Madness: Psychological, Social and Biological Approaches to Schizophrenia. Routledge. https://doi.org/10.4324/9780203420393 DOI: https://doi.org/10.4324/9780203420393
Ritunnano, R. (2022). Overcoming Hermeneutical Injustice in Mental Health: A Role for Critical Phenomenology. Journal of the British Society for Phenomenology, 53(3), 243-260. https://doi.org/10.1080/00071773.2022.2031234 DOI: https://doi.org/10.1080/00071773.2022.2031234
Sakakibara, E. (2023). Epistemic Injustice in the Therapeutic Relationship in Psychiatry. Theoretical Medicine and Bioethics, 44(5), 477-502.
https://doi.org/10.1007/s11017-023-09627-1 DOI: https://doi.org/10.1007/s11017-023-09627-1
Saks, E. R. (2007). The Center Cannot Hold: My Journey Through Madness. Hachette UK.
Sanati, A., & Kyratsous, M. (2015). Epistemic Injustice in Assessment of Delusions. Journal of Evaluation in Clinical Practice, 21(3), 479-485. https://doi.org/10.1111/jep.12347 DOI: https://doi.org/10.1111/jep.12347
Scrutton, A. P. (2017). Epistemic Injustice and Mental Illness. En The Routledge Handbook of Epistemic Injustice. Routledge. https://doi.org/10.4324/9781315212043-34 DOI: https://doi.org/10.4324/9781315212043-34
Scull, A. (2018). Social Order/Mental Disorder: Anglo-American Psychiatry in Historical Perspective. Routledge. https://doi.org/10.4324/9780429455988 DOI: https://doi.org/10.4324/9780429455988
Sherman, B. R., & Goguen, S. (2019). Overcoming Epistemic Injustice: Social and Psychological Perspectives. Rowman & Littlefield.
Sullivan, P. (2019). Epistemic Injustice and Self-Injury: A Concept with Clinical Implications. Philosophy, Psychiatry, & Psychology, 26(4), 349-362. https://doi.org/10.1353/ppp.2019.0049 DOI: https://doi.org/10.1353/ppp.2019.0049
Tate, A. J. M. (2019). Contributory Injustice in Psychiatry. Journal of Medical Ethics, 45(2), 97-100. https://doi.org/10.1136/medethics-2018-104761 DOI: https://doi.org/10.1136/medethics-2018-104761
Taylor, T., Gross, C. L., & Turgeon, B. (2018). Becoming a Good Welfare Manager: Paternalistic Oppressive Othering and Neoliberal Boundary Maintenance. Sociological Focus, 51(4), 335-349. https://doi.org/10.1080/00380237.2018.1452516 DOI: https://doi.org/10.1080/00380237.2018.1452516
Trujillo, N. L. (2020, noviembre 30). Del sobreseimiento al recurso: El proceso judicial de la muerte de Andreas en el HUCA. Newtral. https://bit.ly/4mch4AY
Zisman-Ilani, Y., Roth, R. M., & Mistler, L. A. (2021). Time to Support Extensive Implementation of Shared Decision Making in Psychiatry. JAMA Psychiatry, 78(11), 1183-1184. https://doi.org/10.1001/jamapsychiatry.2021.2247 DOI: https://doi.org/10.1001/jamapsychiatry.2021.2247
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